This International Rare Disease Day, Wednesday, February 28, join us in raising awareness and pledge to run or walk in support of the rare disease community.
Two Ways to Get Involved:
Online registration is now closed for the Boston Common Event. If you would like to register, you may do so on-site at the Boston Common. Registration will begin at 12:00PM on Wednesday, February 28, 2018.
There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their rarity, these conditions are often difficult to diagnose and treat. Patients can endure a long odyssey involving specialty doctors, tests, and misdiagnoses. They can go years or even decades without a correct diagnosis, all while suffering physically from complications of their disease and psychologically from not knowing what their condition is.
Global Genes® is one of the leading rare disease patient advocacy organizations, with a mission to eliminate the challenges of rare disease. They build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.
Sanofi Genzyme, the specialty care global business unit of Sanofi, focuses on developing specialty treatments for debilitating diseases that are often difficult to diagnose and treat, providing hope to patients and their families. Sanofi Genzyme is dedicated to improving rare disease patients’ access to early diagnosis and appropriate treatment. We are committed to empowering the lives of patients with rare diseases by offering sustainable, transformative healthcare options.