Rare Disease Day Toronto

In recognition of Rare Disease Day, Sanofi Genzyme and the Canadian Organization for Rare Disorders (CORD) are partnering to ask Canadians “What Makes You Rare?”

On Friday, February 28th, a truly rare photo exhibit will be unveiled at Brookfield Place in downtown Toronto that features personal stories of Canadians living with rare diseases. The event will be hosted by Josie Dye, a celebrated radio host and television broadcast personality whose son lives with Sotos Syndrome, a rare disease characterized by overgrowth in childhood. Visitors to the exhibit will be asked to share their answer to the question “What makes you rare?” to reflect on their own unique attributes and experiences. The answers will be posted to a wall at the event as a sign of support and solidarity with the rare disease community.

Event Details:

When: Friday, February 28, 2020 from 8 a.m. to 6 p.m.

Where: Brookfield Place, 181 Bay St, Toronto, ON M5J 2T3, Canada

Who: Hosted by Josie Dye, the exhibit is a partnership between the Canadian Organization for Rare Disorders (CORD) and Sanofi Genzyme Canada, and joined by the Answering TTP Foundation, Canadian Association of Pompe, Canadian Fabry Association, Canadian MPS Society, and The National Gaucher Foundation of Canada.